Connecting with Others

In addition to support groups listed in another section of this website, there are other ways that caregivers of those with an FASD can connect. It is important to find the kind of connection that works for you and that may be a combination of what is available. Those with these connections find hope, strength, strategies, and support that often are not available from those who do not walk the path caregivers are taking with their loved ones.

Conferences

At this time (2018), there are two outstanding conferences regarding FASD in North America. One is the annual MOFAS conference held in November annually in Minneapolis (www.mofas.org) and the other in Vancouver, British Columbia (http://interprofessional.ubc.ca ). The latter conference alternates between the International Research Conference on Adolescents and Adults with FASD (even years) and the International Research Conference on FASD. The Adolescents and Adults Conference in Vancouver and the MOFAS conference are not only rich in information about FASD, but also provide an outstanding opportunity to network with other caregivers over a period of days, which often results in an ongoing support from others who “get it” via email and phone. Adolescents and adults attend the Vancouver conference (no fee as of 2018) and have a separate track of programs for those with an FASD; they also participate, if they so desire, in the closing ceremony.

Due to distance, these conferences are often not accessible to caregivers. There are two scholarships available to residents of North Carolina that may cover some of the expenses.

Connecting with others electronically

Facebook pages specific to FASD abound. Some are for caregivers only, some for those with an FASD only, others for caregivers of certain ages, etc. Explore the options through the search function on Facebook.

  • One FB page was started by adults with an FASD: “Flying with Broken Wings.”
  • Another, “Shifting the Paradigm” focuses on the neuro-behavioral approach to FASD, which is highly recommended in living with and helping a person with an FASD.
  • FASD Caregiver Success Support Group with Jeff Noble is very popular. He also offers webinars and speaks around the US.
  • Fetal Alcohol Resource Program post information that we can use every day.

The Virtual Support Group through A Renewed Mind Double ARC Center for FASD Services is ideal if you do not have a support group in your area or if you want another dose of support on a monthly basis.  This offering is one of many services offered by this nationally recognized leader in FASD which has been in existence over 25 years.

Craig Peterson writes an insightful blog entitled “Adopting Faith: A Father’s Unconditional Love

Email List Servs

  • FASlink (for individuals, parents, professionals who deal with FASD) : http://www.faslink.org/faslink.htm
  • Olderfas (support list for parents & mentors of adults with FASD) This email address is being protected from spambots. You need JavaScript enabled to view it. 

Other Resources for Parents

Organizations

First in Families  www.fifnc.org 

MOFAS              www.mofas.org

First Choices      https://firstwnc.org/fullcircle

Sex and FASD

http://www.davidboulding.com/uploads/2/4/1/4/24146766/fetal_alcohol_and_the_rules_for_sex.pdf

https://edmontonfetalalcoholnetwork.org/2018/11/14/tips-dating-sexuality/

http://disabilityandabuse.org/wordpress/?p=39

https://www.fasdwaterlooregion.ca/assets/documents/Tip-Sheet-Relationships-and-Sexuality.pdf

https://www.respectability.org/resources/sexual-education-resources/

https://www.elevatustraining.com/

 Selected Books

  • FASD: Trying Differently Rather than Harder (Diane Malbin)
  • Moment to Moment: Perspectives on FASD in Adolescents (ed. Ira J.Chasnoff)
  • Guided Growth:Educational Interventions for Children with Fetal Alcohol Spectrum Disorders
  • Our FAScinating Journey (Jodee Kulp)
  • The Best I Can Be (Liz Kulp)
  • Braided Cord (Liz Kulp and my 12 strand crew)
  • Fantastic Antoine Grows Up (ed. Judith Kleinfeld)

Selected Resources to Utilize with Children with FASD

Birth Mothers