Often parents ask:  Why bother getting a diagnosis?  Differential diagnosis related to behavioral difficulties and the brain are just as crucial for successful outcomes as those related to physical health. A correct diagnosis of FASD leads to better educational outcomes, job prospects, and overall mental health than otherwise possible. We know that determing the type of cancer is critical to determination of the kind of chemotherapy or other treatment; differentiation of the cause of behavioral problems is no less important than in this example.  If a child is diagnosed with ADHD (often the first diagnosis our kids receive), the usual interventions, such as medication, are not necessarily helpful to those with an FASD, or even the dosage may not be productive since brain differences can affect how medications are metabolized.  

Parents often realize that "typical" parenting techniques do not remedy behavioral challenges of those with a missing diagnosis or a misdiagnosis.  Once an accurate diagnosis is obtained, there are interventions that work, but they are not the ones we reflexively consider.

Others question seeking an FASD diagnosis with the statement that "It doesn't matter, there isn't help anyway."  That is not true;  there may not be as many evidence based interventions as for other diagnoses, but until more are diagnosed with an FASD, there is limited focus on developing those interventions which is a disadvantage for all.  Furthermore, this assertion implies that there is no hope for those with an FASD.  That is absolutely not true!  As with all problems, early intervention is related to positive outcome.  And many adults with FASD, often regardless of when diagnosis was obtained, are proof that diagnosis does matter.  For a more in depth discussion of this, see FASD: Thirty Reasons Why Early Identification Matters

Diagnosis of an Adult: In his own words

Diagnostic capacity in North Carolina is limited.  While there may be some developmental pediatricians, psychiatrists, or psychologists willing to diagnose an individual with an FASD, those are few in number. NCFASD Informed has obtained the following information about practitioners/sites in the state with the ability to diagnose.  The list will be expanded as other possibilities are confirmed.

Please note what has come to our attention several times in the last several years when consulting with families, school staff, and MCO/LMEs: If the child with suspected exposure to alcohol in utero (or a child who does not respond to traditional interventions) is either in foster care or has been adopted, there may be information in the records that states the diagnosis, but it has been passed over for whatever reason. If so,  the specific FASD diagnostic code needs to be entered into whatever medical and school records that exist as a primary diagnosis.  This action gives the diagnosis the attention it deserves.  Additionally, the concerned parent, caretaker, etc. can educate themselves about what this diagnosis means and how the environment needs to be structured and what interventions will be beneficial and share that information with others.  

Being trauma informed is important, but this study shows that theover-emphasis on trauma as being of premier importance in children, especially when we are looking at estimates up to 80% of children in care having an FASD.  And then there is the then there is the 1 in 20 estimate of FASD in the general population in the US.

The main finding of the thesis is that the impact of traumatic childhood experiences on the cognitive and behavioural functioning of children with FASD may be very subtle, especially in terms of cognitive functioning. Clinicians and other professionals should be aware that a history of neglect or abuse does not appear to be a better explanation for cognitive dysfunction or behavioural difficulties than prenatal alcohol exposure. Where children have a history of both exposures, they should primarily be treated as children with FASD, and provided appropriate support and interventions specifically designed for FASD.

http://usir.salford.ac.uk/id/eprint/51974/?fbclid=IwAR1yRurU6GPWddDFX6P-2ejYHMSsOOHMcK2RpxVB7pINsSB4QpkLy9kU4YU

 

Asheville

Chad Haldeman-Englert, MD
William Allen, MD
Clinic Coordinator: Michael Pesant, LCSW
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Fullerton Genetics Center
Fetal Alcohol Spectrum Disorders Clinic
9 Vanderbilt Park Drive
Asheville, NC 28803
828-213-1051 Office
828-213-0039 Fax
Our Brochure - PDF

Charlotte

Yasmin Senturias, MD

Developmental & Behavioral Pediatrics
     of the Carolinas
2608 E. Seventh St., Charlotte, NC 28204
704-403-2626  Office
704-403-2699  Fax

FASD Clinic of the Carolinas (Brochure - PDF)

Greenville


        Evelyn Rawcliffe-Kimbrell, DO 

        Medical Assistant:  Shacora Wiggins
        Administrative Assistant:  Joyce Stevens

Division of Medical Genetics
Department of Pediatrics
Brody School of Medicine
East Carolina University
Greenville, NC  27858-4354l

252-744-2525 Office
252-737-0226 Fax

In order to have an evaluation for exposure to alcohol, a referral from pediatrician or family physician must be forwarded via call or fax.  Upon receipt, an appointment will be scheduled with one of the two physicians.   PLEASE NOTE:  Before getting a referral, have a complete neuropsychological battery completed for the individual to be evaluated.  At the time the appointment is made, you will be informed of what additional materials to bring to the evaluation

 

Talking to Your Child about FASD Diagnosis