About Us

The mission of our all volunteer, grassroots, nonprofit organization is to create FASD informed communities to empower individuals impacted by prenatal exposure to alcohol. Our vision: a world where individuals with FASD can thrive.

In early February 2018, the Journal of the American Medical Association (JAMA) published a study led by UNC researcher, Philip May, Ph.D. The study estimated the prevalence of Fetal Alcohol Spectrum Disorders (FASD) among first-graders in four US communities to be up to one in 20. This study, and the fact that approximately 90% of those with a diagnosable FASD are not even evaluated for this disorder, reinforces that prenatal alcohol exposure is a significant public health issue that can no longer be ignored.

Many times, those affected by alcohol in utero are diagnosed with a variety of mental health diagnoses, but the underlying cause of the symptoms which prompt those diagnoses is not recognized. The accurate diagnosis is vitally important because FASD is a developmental disability and requires different interventions than mental health diagnoses. Prescribed medication may help those symptoms dissipate for a while or not at all. In either case, behavioral challenges continue and all involved become discouraged; all aspects of life are affected: familial relationships, social interactions, academics, and emotional well being. Research shows that early diagnosis leads to early intervention and, thus, improved outcomes for success in all aspects of life.

The above realities for those with an FASD have been experienced firsthand by the two parents who created NCFASD Informed.  Therefore, we provide training to parents and professionals of all disciplines about the red flags that may point to this diagnosis and assist families in having their loved ones diagnosed.  Then we connect the families with services and tools to help those with an FASD diagnosis.

NCFASD Informed incorporated in January 2018 and received 501(c)3 nonprofit status in September 2018.  Based in the Triangle, we serve all 100 counties.